Adults with sickle cell disease (SCD) experience severe pain, emotional distress, and social isolation that diminish their quality of life. This project will test Amani, a novel virtual reality supportive care intervention designed to improve coping skills and strengthen peer support. If feasible and acceptable, Amani offers an accessible digital supportive care intervention to improve psychological well-being and quality of life among individuals living with SCD.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
40
Amani is a multi-component VR supportive care intervention specifically tailored for adults with SCD. Amani integrates mindfulness-based pain management exercises, psychoeducational modules to build adaptive coping strategies, and facilitated VR group sessions to reduce isolation and foster peer support.
Massachusetts General Hospital
Boston, Massachusetts, United States
Feasibility
Amani will be feasible based on proportion of eligible patients enrolled (≥50% of eligible patients enroll), application educational module completion (≥60% of enrolled participants complete the educational modules) and group intervention attendance (≥60% of Amani group sessions).
Time frame: From enrollment to end of treatment (6 weeks)
Acceptability
Amani will be acceptable if ≥80% enrolled patients report a System Usability Score ≥ 80 upon completion of the intervention (6 weeks)
Time frame: From enrollment to end of treatment (6 weeks)
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