Effectiveness of Innovative Educational Methods in Empowering Children With Sickle Cell Disease

N/ANot Yet RecruitingNCT07802210

Aula Ibrahim abd alrazak120 enrolled

Overview

Sickle-cell disease (SCD) is a genetic disorder that affects hemoglobin, the molecule in red blood cells responsible for carrying oxygen. The disease causes red blood cells to become rigid and sickle-shaped, leading to blockages in blood flow and subsequent pain and organ damage (World Health Organization (WHO),2025). Patients with sickle cell disease suffer from various complications of the disease during their lifetime, including anemia, sickle cell crises, acute chest syndrome, stroke, renal failure, retinal detachment and priapism. However, unforeseen and chronic pain crisis are the most common symptoms reported by the patients which are considered as the most common causes of referral to the emergency department and hospital to receive medical care in sickle cell patients (Poku, Atkin,\& Kirk,.2023). Objective(s) of the study: 1. To evaluate the effectiveness of Innovative Educational Methods on self-efficacy in children with sickle cell anemia. 2. To evaluate the effectiveness of Innovative Educational Methods on self-care capacity in children with sickle cell anemia. 3. To find out the relationship between the effectiveness of Innovative Educational Methods on self-efficacy, self-care capacity and demographic characteristics of children with sickle cell anemia.

Study Type

INTERVENTIONAL

Allocation

RANDOMIZED

Purpose

SUPPORTIVE_CARE

Masking

SINGLE

Enrollment

120

Conditions

Sickle Cell Anemia in Children

Interventions

video interventionOTHER

Participants in this group will watch an educational video lasting under 5 minutes. The video covers key information about anemia, including its definition, pathophysiology, symptoms, underlying causes, potential complications, and preventive pain crisis in simple way by use AI programs to generation it ."

game interventionOTHER

Participants in this group will play an educational game . The game covers key information about anemia, including its definition, pathophysiology, symptoms, underlying causes, potential complications, and preventive pain crisis in simple way by use AI programs to generation it .

Eligibility

Sex: ALLMin age: 11 YearsMax age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: 1. children with sickle cell anemia and visited Ibn Al-Baladi ,Al-Karamah center for hereditary blood diseases 2. age 12-18 years 3. being able to read and write 4. agrees and willing to participate in the study Exclusion Criteria: 1. children who have a history of mental illness 2. children with advanced complications of SCD, such as multi-system organ damage

Outcomes

Primary Outcomes

self-care capacity level

The Appraisal of Self-Care Agency Scale-Revised (ASA-R) According to Orem's self-care theory, Kearney and Fleischer originally developed this scale to assess the health-related self-care capacity level The scale consists of 15 items,

Time frame: pre and immediately post intervention and post 2 after 1 month

self efficacy

Sickle Cell Self-Efficacy Scale (SCSES): The Sickle Cell Self-Efficacy Scale, adapted from Edwards et al. (2001), was used to assess patients' abilities to manage their SCD and carry out daily activities effectively.