Not applicableLooking for participantsNCT04883905What this trial is testingELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)Who this might be right forAcute Hepatic Porphyria Alnylam Pharmaceuticals 150
Not applicableEnded earlyNCT03547297What this trial is testingINSIGHT-AHP: A Study to Characterize the Prevalence of Acute Hepatic Porphyria (AHP) in Patients With Clinical Presentation and History Consistent With AHPWho this might be right forAcute Hepatic PorphyriaHepatic PorphyriasAcute Intermittent Porphyria (AIP)+4 more Alnylam Pharmaceuticals 212
Not applicableActive Not RecruitingNCT05344599What this trial is testingEvaluating the Prevalence of Acute Hepatic Porphyria in Postural Tachycardia SyndromeWho this might be right forPostural Orthostatic Tachycardia SyndromeAcute Hepatic Porphyria Vanderbilt University Medical Center 70
Testing effectiveness (Phase 2)Study completedNCT02949830What this trial is testingEvaluate Long-term Safety and Clinical Activity of Givosiran (ALN-AS1) in Patient With Acute Intermittent Porphyria (AIP)Who this might be right forAcute Intermittent Porphyria Alnylam Pharmaceuticals 16
Early research (Phase 1)Study completedNCT00004397What this trial is testingPhase I Study of Tin Mesoporphyrin in Patients on Long Term Heme Therapy for Prevention of Acute Attacks of PorphyriaWho this might be right forPorphyria National Center for Research Resources (NCRR) 20
Not applicableStudy completedNCT03906214What this trial is testingEvidence-based Assessment of Medication Sensitivity in Acute Hepatic PorphyriaWho this might be right forPorphyrias University of South Florida 60
Large-scale testing (Phase 3)Study completedNCT03338816What this trial is testingENVISION: A Study to Evaluate the Efficacy and Safety of Givosiran (ALN-AS1) in Patients With Acute Hepatic Porphyrias (AHP)Who this might be right forAcute Hepatic PorphyriaAcute Intermittent PorphyriaPorphyria, Acute Intermittent+4 more Alnylam Pharmaceuticals 94
Not applicableApproved For MarketingNCT04056481What this trial is testingExpanded Access Protocol of Givosiran for Patients With Acute Hepatic PorphyriaWho this might be right forAcute Hepatic Porphyria Alnylam Pharmaceuticals
Testing effectiveness (Phase 2)Study completedNCT02180412What this trial is testingControlled Trial of Panhematin in Treatment of Acute Attacks of PorphyriaWho this might be right forAcute Porphyrias The University of Texas Medical Branch, Galveston 20
Testing effectiveness (Phase 2)Study completedNCT00004396What this trial is testingStudies in Porphyria III: Heme and Tin Mesoporphyrin in Acute PorphyriasWho this might be right forPorphyria National Center for Research Resources (NCRR) 32
Testing effectiveness (Phase 2)Ended earlyNCT02922413What this trial is testingPanhematin for Prevention of Acute Attacks of PorphyriaWho this might be right forAcute Intermittent PorphyriaHereditary CoproporphyriaVariegate Porphyria The University of Texas Medical Branch, Galveston 13
Testing effectiveness (Phase 2)Study completedNCT00004789What this trial is testingPhase I/II Study of Heme Arginate and Tin Mesoporphyrin for Acute PorphyriaWho this might be right forPorphyria National Center for Research Resources (NCRR) 59
Early research (Phase 1)Study completedNCT00004398What this trial is testingPhase I Study of Heme Arginate With or Without Tin Mesoporphyrin in Patients With Acute Attacks of PorphyriaWho this might be right forPorphyria National Center for Research Resources (NCRR) 24
Not applicableStudy completedNCT04923516What this trial is testingPrevalence of Acute Hepatic PorphyriaWho this might be right forAcute Hepatic Porphyria Association pour la Recherche en Medecine Interne 150
Not applicableActive Not RecruitingNCT01617642What this trial is testingDental Health, Diet, Inflammation and Biomarkers in Patients With Acute Intermittent Porphyria(AIP)Who this might be right forAcute Intermittent Porphyria Nordlandssykehuset HF 100
Large-scale testing (Phase 3)Study completedNCT00418795What this trial is testingPorphozym in the Treatment of Acute Attacks in AIPWho this might be right forAcute Intermittent Porphyria Zymenex A/S 36
Not applicableLooking for participantsNCT01561157What this trial is testingLongitudinal Study of the PorphyriasWho this might be right forAcute PorphyriasCutaneous Porphyrias Icahn School of Medicine at Mount Sinai 1,500
Not applicableStudy completedNCT02076763What this trial is testingObservational Study of Acute Intermittent Porphyria PatientsWho this might be right forAcute Intermittent Porphyria Digna Biotech S.L. 9
Early research (Phase 1)Study completedNCT03505853What this trial is testingInvestigate the Interaction Between Givosiran and a 5-probe Drug Cocktail in Patients With Acute Intermittent Porphyria (AIP)Who this might be right forAcute Intermittent Porphyria (AIP)Acute Hepatic Porphyria (AHP)Porphyria, Acute Intermittent+1 more Alnylam Pharmaceuticals 10
Not applicableStudy completedNCT02240784What this trial is testingEXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)Who this might be right forAcute Hepatic Porphyria Alnylam Pharmaceuticals 136