Early research (Phase 1)UnknownNCT02916992What this trial is testingPrevalence of Spontaneous Pneumothorax in BHDWho this might be right forSpontaneous Pneumothorax Hans Smit 200
Large-scale testing (Phase 3)Study completedNCT00928798What this trial is testingTopical Rapamycin for FibrofolliculomasWho this might be right forBirt-Hogg-Dubé Syndrome Maastricht University Medical Center 19
Not applicableEnrolling By InvitationNCT06330324What this trial is testingReproductive Options in Inherited Skin DiseasesWho this might be right forIchthyosisPalmoplantar KeratosesEpidermolysis Bullosa+7 more Maastricht University Medical Center 650
Not applicableLooking for participantsNCT00033137What this trial is testingGenetic Analysis of Birt Hogg-Dube Syndrome and Characterization of Predisposition to Kidney CancerWho this might be right forKidney NeoplasmsKidney CancerPneumothorax+1 more National Cancer Institute (NCI) 950
Not applicableLooking for participantsNCT06330350What this trial is testingQualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive CounsellingWho this might be right forQuality of LifeIchthyosisPalmoplantar Keratoses+7 more Maastricht University Medical Center 25
Not applicableUnknownNCT05534854What this trial is testingFrequency, Clinical Phenotype and Genetic Analysis of Heritable Kidney Cancer SyndromesWho this might be right forRenal Tumor HistologyKidney CancerRenal Cell Carcinoma+11 more RenJi Hospital 500
Not applicableLooking for participantsNCT03749980What this trial is testingMyVHL: Patient Natural History StudyWho this might be right forVon Hippel-Lindau DiseaseHereditary Leiomyomatosis and Renal Cell CancerBirt-Hogg-Dube Syndrome+1 more Joshua Mann, MPH 10,000
Not applicableStudy completedNCT03040115What this trial is testingAssessment of Safety of Air Travel in Patients With Birt-Hogg-Dube SyndromeWho this might be right forBirt-Hogg-Dube Syndrome University of Cincinnati 104
Testing effectiveness (Phase 2)Ended earlyNCT02504892What this trial is testingEverolimus Therapy in People With Birt-Hogg-Dube Syndrome (BHD)-Associated Kidney Cancer or Sporadic Chromophobe Renal CancerWho this might be right forRenal CancerBirt-Hogg-Dube Syndrome National Cancer Institute (NCI) 3