Testing effectiveness (Phase 2)Study completedNCT03861871What this trial is testingFenfluramine in CDKL5 Deficiency Disorder (CDD)Who this might be right forCDD NYU Langone Health 7
Testing effectiveness (Phase 2)Study completedNCT03694275What this trial is testingA Multicenter, Open-label, Pilot Study of Soticlestat (TAK-935/OV935) in Participants With 15Q Duplication Syndrome (Dup 15q) or Cyclin-Dependent Kinase-Like 5 (CDKL5) Deficiency Disorder (ARCADE STUDY)Who this might be right for15q Duplication SyndromeCDKL5 Deficiency Disease Takeda 20
Not applicableLooking for participantsNCT06448663What this trial is testingTargeting the Gut to Improve Seizure Control in CDKL5 Deficiency Disorder (CDD)Who this might be right forCDKL5 University of Milan 20
Not applicableLooking for participantsNCT04486768What this trial is testingInternational CDKL5 RegistryWho this might be right forCDKL5 Deficiency Disorder (CDD) University of Pennsylvania 500
Large-scale testing (Phase 3)Study completedNCT03572933What this trial is testingStudy of Adjunctive Ganaxolone Treatment in Children and Young Adults With CDKL5 Deficiency DisorderWho this might be right forCDKL5 Deficiency Disorder Marinus Pharmaceuticals 101
Not applicableActive Not RecruitingNCT05373719What this trial is testingObservational Study in Patients With Cyclin-dependent Kinase-like 5 Deficiency DisorderWho this might be right forCyclin-Dependent Kinase-Like 5 Deficiency Disorder Loulou Foundation 112
Large-scale testing (Phase 3)Not Yet RecruitingNCT05249556What this trial is testingDouble-blind, Randomized, Placebo-controlled Trial of Ganaxolone in CDKL5 Deficiency Patients 6 Months to Less Than 2 Years OldWho this might be right forCDKL5 Deficiency Disorder Immedica Pharma AB 20
Not applicableLooking for participantsNCT05558371What this trial is testingInternational CDKL5 Clinical Research NetworkWho this might be right forCDKL5CDKL5 Deficiency DisorderCDD University of Colorado, Denver 1,000