Not applicableWithdrawnNCT06554730What this trial is testingMSD Belzutifan PASWho this might be right forVon Hippel Lindau Disease Merck Sharp & Dohme LLC
Not applicableStudy completedNCT02120040What this trial is testingPsychosocial Consequences of the Screening of Von Hippel Lindau Diseases for Patients Operated for a hémangioblastoma of Nervous Centrasl SystemWho this might be right forHemangioblastoma (HB) of the Central Nervous System (CNS) Assistance Publique Hopitaux De Marseille 42
Testing effectiveness (Phase 2)Study completedNCT00589784What this trial is testingPhase II Trial of Sunitinib (SU011248) in Patients With Recurrent or Inoperable MeningiomaWho this might be right forCNS CancerMeningiomaIntracranial Hemangiopericytoma+2 more Memorial Sloan Kettering Cancer Center 50
Testing effectiveness (Phase 2)Looking for participantsNCT07167329What this trial is testingReal-World Effectiveness and Pharmacogenetics of Belzutifan in VHL Syndrome: The BELIEVE-VHL TrialWho this might be right forVon Hippel LindauVon Hippel Lindau DiseaseVon Hippel Lindau-Deficient Clear Cell Renal Cell Carcinoma+5 more José Claudio Casali da Rocha 100
Not applicableActive Not RecruitingNCT00005902What this trial is testingStudy of Brain and Spinal Cord Tumor Growth and Cyst Development in Patients With Von Hippel Lindau DiseaseWho this might be right forHemangioblastomaHippel Lindau Disease National Institute of Neurological Disorders and Stroke (NINDS) 250
Early research (Phase 1)Looking for participantsNCT06553339What this trial is testingHS-10516 in Patients With VHL Syndrome Associated TumorsWho this might be right forVon Hippel Lindau-Deficient Clear Cell Renal Cell Carcinoma Jiangsu Hansoh Pharmaceutical Co., Ltd. 60
Not applicableLooking for participantsNCT05424016What this trial is testingPropranolol and Von Hippel-Lindau DiseaseWho this might be right forHemangioblastoma of CNSVon Hippel-Lindau Disease Assistance Publique - Hôpitaux de Paris 85
Not applicableUnknownNCT02207686What this trial is testingAssessment of Residual VHL Function in Tumors - Can it Predict the Patients' Individual Course of Disease?Who this might be right forVon Hippel-Lindaus Disease Marie Luise Bisgaard, MD 50
Testing effectiveness (Phase 2)Ended earlyNCT01266070What this trial is testingTKI 258 in Von Hippel-Lindau Syndrome (VHL)Who this might be right forVon Hippel-Lindau Syndrome M.D. Anderson Cancer Center 6
Testing effectiveness (Phase 2)Study completedNCT00052013What this trial is testingTreatment of Von Hippel-Lindau (VHL)-Related Hemangioblastoma With PTK787/ZK 222584Who this might be right forVon Hippel-Lindau DiseaseCNS HemangioblastomaRetinal Hemangioblastoma Novartis Pharmaceuticals 11
Post-approval studies (Phase 4)Looking for participantsNCT04081701What this trial is testing68-Ga DOTATATE PET/MRI in the Diagnosis and Management of Somatostatin Receptor Positive CNS Tumors.Who this might be right forCNS TumorsMeningiomaEsthesioneuroblastoma+4 more Weill Medical College of Cornell University 200
Not applicableLooking for participantsNCT05259605What this trial is testingObservational Study for Assessing Treatment and Outcome of Patients With Primary Brain Tumours Using cIMPACT-NOW and 2021 WHO ClassificationWho this might be right forGliomaGlioneuronal TumorChoroid Plexus Tumor+10 more European Organisation for Research and Treatment of Cancer - EORTC 1,650