Not applicableUnknownNCT04624789What this trial is testingRegistry GangliosidosesWho this might be right forGangliosidosesGM1 GangliosidosisMorquio B Disease+6 more SphinCS Lyso Gemeinnutzige UG (Haftungsbeschrankt) 40
Testing effectiveness (Phase 2)Study completedNCT01102686What this trial is testingPyrimethamine as a Treatment for Late-Onset GM2-gangliosidosis (Tay-Sachs and Sandhoff Disease)Who this might be right forGangliosidoses, GM2Sandhoff DiseaseTay-Sachs Disease The Hospital for Sick Children 20
Not applicableLooking for participantsNCT03047369What this trial is testingThe Myelin Disorders Biorepository ProjectWho this might be right forLeukodystrophyWhite Matter DiseaseLeukoencephalopathies+63 more Children's Hospital of Philadelphia 12,000
Not applicableStudy completedNCT01626092What this trial is testingReduced-Intensity Hematopoietic Stem Cell Transplant for High Risk Lysosomal and Peroxisomal DisordersWho this might be right forLysosomal Storage DiseasePeroxisomal Disorder Masonic Cancer Center, University of Minnesota 3
Testing effectiveness (Phase 2)Active Not RecruitingNCT04798235What this trial is testingFirst-in-Human Study of TSHA-101 Gene Therapy for Treatment of Infantile Onset GM2 GangliosidosisWho this might be right forInfantile GM2 Gangliosidosis (Disorder) Dr. Anupam Sehgal 3
Not applicableNot Yet RecruitingNCT07445490What this trial is testingTranslational Potential of ex Vivo Gene Therapy in GM2 GangliosidosisWho this might be right forTay-Sachs Disease GangliosideSandhoff Disease Ganglioside Assistance Publique - Hôpitaux de Paris 6
Not applicableActive Not RecruitingNCT06614569What this trial is testingLong-Term Follow-Up of Subjects Treated With AXO-AAV-GM2 for Tay-Sachs or Sandhoff DiseaseWho this might be right forGM2 GangliosidosisTay Sachs DiseaseSandhoff Disease Terence Flotte 7
Early research (Phase 1)Ended earlyNCT04669535What this trial is testingA Dose-escalation and Safety & Efficacy Study of AXO-AAV-GM2 in Tay-Sachs or Sandhoff DiseaseWho this might be right forTay-Sachs DiseaseSandhoff Disease Terence Flotte 9
Large-scale testing (Phase 3)Ended earlyNCT00654433What this trial is testingALD-101 Adjuvant Therapy of Unrelated Umbilical Cord Blood Transfusion (UCBT) in Patients With Inherited Metabolic DiseasesWho this might be right forInherited Metabolic DiseasesLysosomal Storage DisordersPeroxisomal Storage Diseases+2 more Aldagen 40
Testing effectiveness (Phase 2)Study completedNCT00383448What this trial is testingHSCT for High Risk Inherited Inborn ErrorsWho this might be right forAdrenoleukodystrophyMetachromatic LeukodystrophyGloboid Cell Leukodystrophy+6 more Masonic Cancer Center, University of Minnesota 38
Not applicableWithdrawnNCT02298647What this trial is testingBiomarker for Gangliosidosis: BioGM1/BioGM2 (BioGM1/GM2)Who this might be right forHepato-splenomegalyDysostosis MultiplexSeizures+1 more CENTOGENE GmbH Rostock
Not applicableLooking for participantsNCT00668187What this trial is testingA Natural History Study of the GangliosidosesWho this might be right forTay-Sachs DiseaseSandhoff DiseaseLate Onset Tay-Sachs Disease+2 more University of Minnesota 52
Testing effectiveness (Phase 2)Study completedNCT05758922What this trial is testingPhase 2 Study Evaluating the Safety, Tolerability, Pharmacokinetics and Pharmacodynamics of Oral AZ-3102 in Patients With GM2 Gangliosidosis or Niemann-Pick Type C DiseaseWho this might be right forGM2 GangliosidosisNiemann-Pick Disease, Type C Azafaros B.V. 13
Not applicableStudy completedNCT01869270What this trial is testingGene Therapy for Tay-Sachs DiseaseWho this might be right forTay Sachs DiseaseSandhoff DiseaseLate Onset Tay Sachs Disease University of Minnesota 4
Not applicableStudy completedNCT02699190What this trial is testingLeukoSEQ: Whole Genome Sequencing as a First-Line Diagnostic Tool for LeukodystrophiesWho this might be right forLeukodystrophyWhite Matter Disease4H Syndrome+61 more Children's Hospital of Philadelphia 236
Not applicableLooking for participantsNCT03333200What this trial is testingLongitudinal Study of Neurodegenerative DisordersWho this might be right forMLDKrabbe DiseaseALD+24 more University of Pittsburgh 1,500
Not applicableStudy completedNCT05109793What this trial is testingGM1 and GM2 Gangliosidosis PROspective Neurological Disease TrajectOry Study (PRONTO)Who this might be right forGM1 GangliosidosisSandhoff DiseaseTay-Sachs Disease Azafaros B.V. 31
Testing effectiveness (Phase 2)Looking for participantsNCT07399704What this trial is testingEvaluate the Safety and Efficacy of Nizubaglustat (AZ-3102) in Patients With GM2 Gangliosidosis or Niemann-Pick Type C DiseaseWho this might be right forGM2 GangliosidosisNiemann-Pick Type C Disease Azafaros B.V. 21
Testing effectiveness (Phase 2)Study completedNCT03759665What this trial is testingN-Acetyl-L-Leucine for GM2 Gangliosidosis (Tay-Sachs and Sandhoff Disease)Who this might be right forGM2 GangliosidosisTay-Sachs DiseaseSandhoff Disease IntraBio Inc 30