Not applicableStudy completedNCT01016756What this trial is testingGenetic Analysis of PHACE Syndrome (Hemangioma With Other Congenital Anomalies)Who this might be right forPHACE Syndrome Medical College of Wisconsin 341
Testing effectiveness (Phase 2)WithdrawnNCT01997255What this trial is testingAdjunctive Everolimus (RAD 001) Therapy for Epilepsy in Children With Sturge-Weber Syndrome (SWS)Who this might be right forSturge Weber Syndrome Baylor College of Medicine
Not applicableUnknownNCT00490607What this trial is testingA Prospective Study Comparing the Incidence of Infantile Hemangiomas Following Normal Pregnancies Versus Pregnancies Complicated by Placental AbnormalitiesWho this might be right forHemangioma Rady Children's Hospital, San Diego
Not applicableLooking for participantsNCT06214767What this trial is testingStudy on Treatment Decision-Making and Prognostic Follow-Up for Untreated Cerebral Cavernous MalformationsWho this might be right forHemangioma, Cavernous, Central Nervous System Beijing Tiantan Hospital 1,200
Not applicableLooking for participantsNCT02399527What this trial is testingLymphatic Anomalies Registry for the Assessment of Outcome DataWho this might be right forLymphatic MalformationGeneralized Lymphatic Anomaly (GLA)Central Conducting Lymphatic Anomaly+7 more Boston Children's Hospital 1,000
Not applicableWithdrawnNCT04344626What this trial is testingUse of a Tonometer to Identify Epileptogenic Lesions During Pediatric Epilepsy SurgeryWho this might be right forEpilepsyFocal Cortical DysplasiaTuberous Sclerosis+7 more University of California, Los Angeles
Not applicableLooking for participantsNCT05477680What this trial is testingIntraoperative Brain Shift Calculation StudyWho this might be right forTumor, BrainCavernomaArteriovenous Malformations+1 more Sklifosovsky Institute of Emergency Care 100
Testing effectiveness (Phase 2)Study completedNCT00975819What this trial is testingSafety and Efficacy Study of Sirolimus in Complicated Vascular AnomaliesWho this might be right forKaposiform HemangioendotheliomasTufted AngiomaCapillary Venous Lymphatic Malformation+6 more Denise Martin Adams 61
Not applicableLooking for participantsNCT06056635What this trial is testingA Prospective Study on the Role of Karl Storz Curved and Straight Fetoscopes (11508AAK and 11506AAK) for Fetoscopic Intrauterine ProceduresWho this might be right forFetal ConditionsMaternal; ProcedurePregnancy Related+7 more Boston Children's Hospital 50
Post-approval studies (Phase 4)UnknownNCT04921722What this trial is testingPercutaneous Administration of Sirolimus in the Treatment of Superficial Complicated Vascular AnomaliesWho this might be right forKaposiform HemangioendotheliomaTufted AngiomaSuperficial Vascular Anomalies+1 more Children's Hospital of Fudan University 75
Testing effectiveness (Phase 2)Study completedNCT02859441What this trial is testingA Phase I/II Trial for Intravitreous Treatment of Severe Ocular Von Hippel-Lindau Disease Using a Combination of the PDGF Antagonist E10030 and the VEGF Antagonist RanibizumabWho this might be right forVon Hippel-Lindau Syndrome National Eye Institute (NEI) 3
Testing effectiveness (Phase 2)Study completedNCT02603328What this trial is testingAtorvastatin Treatment of Cavernous Angiomas With Symptomatic Hemorrhage Exploratory Proof of Concept (AT CASH EPOC) TrialWho this might be right forCerebral Cavernous Malformation University of Chicago 80
Testing effectiveness (Phase 2)Ended earlyNCT01266070What this trial is testingTKI 258 in Von Hippel-Lindau Syndrome (VHL)Who this might be right forVon Hippel-Lindau Syndrome M.D. Anderson Cancer Center 6
Early research (Phase 1)UnknownNCT02496013What this trial is testingClinical Translation of a Novel Albumin-Binding PET Radiotracer 68Ga-NEBWho this might be right forArteriovenous MalformationHemangiomaNeoplasms Lymph Nodes+1 more Peking Union Medical College Hospital 70
Very early researchEnded earlyNCT01764451What this trial is testingPermeability MRI in Cerebral Cavernous Malformations Type 1 in New Mexico: Effects of StatinsWho this might be right forCavernous Angioma, FamilialCerebral Cavernous MalformationsCerebral Cavernous Hemangioma University of New Mexico 12
Early research (Phase 1)Study completedNCT02108002What this trial is testingEffect of Vorinostat on Nervous System Hemangioblastomas in Von Hippel-Lindau Disease (Missense Mutation Only)Who this might be right forVon Hippel-Lindau Disease National Institute of Neurological Disorders and Stroke (NINDS) 7
Not applicableLooking for participantsNCT05424016What this trial is testingPropranolol and Von Hippel-Lindau DiseaseWho this might be right forHemangioblastoma of CNSVon Hippel-Lindau Disease Assistance Publique - Hôpitaux de Paris 85
Not applicableLooking for participantsNCT07183644What this trial is testingMaximizing Laser Therapy Success for Port-Wine Birthmarks in Pediatric PatientsWho this might be right forPort Wine Stains University of Texas Southwestern Medical Center 200
Post-approval studies (Phase 4)Study completedNCT02625389What this trial is testingEvaluate How Safe and Effective is the Mixture of Lipiodol® Ultra Fluid and Glue When Used for Embolization ProceduresWho this might be right forCongenital HemangiomaHemangioendotheliomaAngiosarcoma+1 more Guerbet 132
Testing effectiveness (Phase 2)Study completedNCT05085561What this trial is testingThe Symptomatic Cerebral Cavernous Malformation Trial of REC-994Who this might be right forCerebral Cavernous Malformation Recursion Pharmaceuticals Inc. 62