Not applicableLooking for participantsNCT04883905What this trial is testingELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)Who this might be right forAcute Hepatic Porphyria Alnylam Pharmaceuticals 150
Not applicableEnded earlyNCT03547297What this trial is testingINSIGHT-AHP: A Study to Characterize the Prevalence of Acute Hepatic Porphyria (AHP) in Patients With Clinical Presentation and History Consistent With AHPWho this might be right forAcute Hepatic PorphyriaHepatic PorphyriasAcute Intermittent Porphyria (AIP)+4 more Alnylam Pharmaceuticals 212
Not applicableEnded earlyNCT00680290What this trial is testingThe Effect of Low Intensity Exercise on Quality of Life and Hemodynamics in Patients With Permanent Atrial FibrillationWho this might be right forAtrial Fibrillation University of Texas Southwestern Medical Center 20
Not applicableActive Not RecruitingNCT05344599What this trial is testingEvaluating the Prevalence of Acute Hepatic Porphyria in Postural Tachycardia SyndromeWho this might be right forPostural Orthostatic Tachycardia SyndromeAcute Hepatic Porphyria Vanderbilt University Medical Center 70
Not applicableStudy completedNCT03906214What this trial is testingEvidence-based Assessment of Medication Sensitivity in Acute Hepatic PorphyriaWho this might be right forPorphyrias University of South Florida 60
Large-scale testing (Phase 3)Study completedNCT03338816What this trial is testingENVISION: A Study to Evaluate the Efficacy and Safety of Givosiran (ALN-AS1) in Patients With Acute Hepatic Porphyrias (AHP)Who this might be right forAcute Hepatic PorphyriaAcute Intermittent PorphyriaPorphyria, Acute Intermittent+4 more Alnylam Pharmaceuticals 94
Not applicableApproved For MarketingNCT04056481What this trial is testingExpanded Access Protocol of Givosiran for Patients With Acute Hepatic PorphyriaWho this might be right forAcute Hepatic Porphyria Alnylam Pharmaceuticals
Not applicableStudy completedNCT00299195What this trial is testingStudy of Sulindac in Oral Premalignant LesionsWho this might be right forLeukoplakia, OralBenign Neoplasms Memorial Sloan Kettering Cancer Center 63
Testing effectiveness (Phase 2)Ended earlyNCT02922413What this trial is testingPanhematin for Prevention of Acute Attacks of PorphyriaWho this might be right forAcute Intermittent PorphyriaHereditary CoproporphyriaVariegate Porphyria The University of Texas Medical Branch, Galveston 13
Not applicableStudy completedNCT04923516What this trial is testingPrevalence of Acute Hepatic PorphyriaWho this might be right forAcute Hepatic Porphyria Association pour la Recherche en Medecine Interne 150
Not applicableLooking for participantsNCT01561157What this trial is testingLongitudinal Study of the PorphyriasWho this might be right forAcute PorphyriasCutaneous Porphyrias Icahn School of Medicine at Mount Sinai 1,500
Early research (Phase 1)Study completedNCT03505853What this trial is testingInvestigate the Interaction Between Givosiran and a 5-probe Drug Cocktail in Patients With Acute Intermittent Porphyria (AIP)Who this might be right forAcute Intermittent Porphyria (AIP)Acute Hepatic Porphyria (AHP)Porphyria, Acute Intermittent+1 more Alnylam Pharmaceuticals 10
Not applicableStudy completedNCT02240784What this trial is testingEXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)Who this might be right forAcute Hepatic Porphyria Alnylam Pharmaceuticals 136
Not applicableStudy completedNCT01568554What this trial is testingClinical Diagnosis of Acute PorphyriaWho this might be right forHereditary Coproporphyria (HCP)Acute Intermittent Porphyria (AIP)Variegate Porphyria (VP) University of California, San Francisco 148
Not applicableUnknownNCT05496933What this trial is testingColombia National Porphyria RegistryWho this might be right forRare DiseasesPorphyrias Fundación Grupo de Investigación en Cuidados Intensivos y Obstetricia 100
Not applicableActive Not RecruitingNCT02935400What this trial is testingAcute Porphyria Biomarkers for Disease ActivityWho this might be right forAcute Intermittent PorphyriaHereditary CoproporphyriaVariegate Porphyria The University of Texas Medical Branch, Galveston 50