Not applicableActive Not RecruitingNCT04823143What this trial is testingNatural History Study of Patients With VCP-related DiseaseWho this might be right forIBMPFD Nationwide Children's Hospital 44
Not applicableLooking for participantsNCT01353430What this trial is testingCharacterization of Inclusion Body Myopathy Associated With Paget's Disease of Bone and Frontotemporal Dementia (IBMPFD)Who this might be right forInclusion Body Myopathy With Early-onset Paget Disease and Frontotemporal DementiaPaget Disease of BoneFrontotemporal Dementia+1 more University of California, Irvine 50
Not applicableLooking for participantsNCT01793168What this trial is testingRare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at SanfordWho this might be right forRare DisordersUndiagnosed DisordersDisorders of Unknown Prevalence+340 more Sanford Health 20,000
Not applicableStudy completedNCT04060082What this trial is testingVoices Of Individuals: Challenges and Experiences Of bvFTDWho this might be right forFrontotemporal DementiaFrontotemporal DegenerationFrontotemporal Dementia, Behavioral Variant+1 more University of Pennsylvania 26