Not applicableStudy completedNCT02372773What this trial is testingLongitudinal Evaluation of Familial Frontotemporal Dementia SubjectsWho this might be right forFamilial Frontotemporal Dementia Mayo Clinic 398
Not applicableLooking for participantsNCT00874783What this trial is testingDevelopment of IPS from Donated Somatic Cells of Patients with Neurological DiseasesWho this might be right forNeurodegenerative Disorders Hadassah Medical Organization 120
Not applicableLooking for participantsNCT05744310What this trial is testingEffects of Long Term Ventilation Support on the Quality of Life of ALS Patients and Their FamiliesWho this might be right forAmyotrophic Lateral SclerosisMotor Neuron DiseaseNervous System Diseases+3 more Haukeland University Hospital 200
Not applicableEnded earlyNCT02550691What this trial is testingIdentification of a Biomarker Associated With Cis-duplication of the SMN1 GeneWho this might be right forSpinal Muscular Atrophy University Hospital, Rouen 48
Large-scale testing (Phase 3)Study completedNCT00706147What this trial is testingPhase II/III Randomized, Placebo-controlled Trial of Arimoclomol in SOD1 Positive Familial Amyotrophic Lateral SclerosisWho this might be right forAmyotrophic Lateral Sclerosis University of Miami 38
Not applicableLooking for participantsNCT06539169What this trial is testingFLOWER: Following Longitudinal Outcomes With Epidemiology for Rare DiseasesWho this might be right forAlpha-ThalassemiaBeta-ThalassemiaAmyloidosis+14 more xCures 1,000
Not applicableLooking for participantsNCT03865420What this trial is testingAmyotrophic Lateral Sclerosis (ALS) Families ProjectWho this might be right forALS Columbia University 300
Not applicableEnrolling By InvitationNCT03655223What this trial is testingEarly Check: Expanded Screening in NewbornsWho this might be right forSpinal Muscular AtrophyFragile X SyndromeFragile X - Premutation+182 more RTI International 30,000
Not applicableLooking for participantsNCT04695210What this trial is testingVirtual Peer-to-peer Support Programme for Carers of MNDWho this might be right forMotor Neuron DiseaseAmyotrophic Lateral Sclerosis King's College London 154
Not applicableWithdrawnNCT01459302What this trial is testingGenetic Study of Familial and Sporadic ALS/Motor Neuron Disease, Miyoshi Myopathy and Other Neuromuscular DisordersWho this might be right forAmyotrophic Lateral SclerosisFrontotemporal DementiaPLS+7 more University of Massachusetts, Worcester
Not applicableLooking for participantsNCT00317616What this trial is testingThe Pre-symptomatic Familial Amyotrophic Lateral Sclerosis (Pre-fALS) StudyWho this might be right forAmyotrophic Lateral Sclerosis University of Miami 500
Not applicableStudy completedNCT04293484What this trial is testingCortico-Spinal tDCS as Rehabilitative Intervention in Amyotrophic Lateral SclerosisWho this might be right forMotor Neuron Disease, FamilialAmyotrophic Lateral Sclerosis With Dementia Azienda Socio Sanitaria Territoriale degli Spedali Civili di Brescia 31
Very early researchStudy completedNCT03707795What this trial is testingTreatment of FUS-Related ALS With Betamethasone - The TRANSLATE StudyWho this might be right forFamilial Amyotrophic Lateral Sclerosis Edward Kasaraskis 6
Early research (Phase 1)Ended earlyNCT06215755What this trial is testingVRG50635 in Participants With Amyotrophic Lateral Sclerosis (ALS)Who this might be right forAmyotrophic Lateral Sclerosis Verge Genomics 54
Early research (Phase 1)Study completedNCT01041222What this trial is testingSafety, Tolerability, and Activity Study of ISIS SOD1Rx to Treat Familial Amyotrophic Lateral Sclerosis (ALS) Caused by SOD1 Gene MutationsWho this might be right forFamilial Amyotrophic Lateral Sclerosis Ionis Pharmaceuticals, Inc. 33
Not applicableTemporarily pausedNCT03449212What this trial is testingSOD1 Kinetics Measurements in ALS PatientsWho this might be right forAmyotrophic Lateral Sclerosis, FamilialAmyotrophic Lateral Sclerosis, Sporadic Washington University School of Medicine 86
Testing effectiveness (Phase 2)Study completedNCT01083667What this trial is testingSOD1 Inhibition by Pyrimethamine in Familial Amyotrophic Lateral Sclerosis (ALS)Who this might be right forFamilial Amyotrophic Lateral Sclerosis Weill Medical College of Cornell University 32
Not applicableStudy completedNCT05852405What this trial is testingClinical Characteristics, Natural History, Health Care Measures, and Genetic Screening in Patients With ALSWho this might be right forMotor Neuron Disease, Amyotrophic Lateral Sclerosis Ambulanzpartner Soziotechnologie APST GmbH 2,000
Not applicableUnknownNCT05589987What this trial is testingSpinal Muscular Atrophy on Wheels, Using Power MobilityWho this might be right forSpinal Muscular Atrophy University of Castilla-La Mancha 20
Not applicableStudy completedNCT00821132What this trial is testingGenetics of Familial and Sporadic ALSWho this might be right forAmyotrophic Lateral Sclerosis (ALS)Familial Amyotrophic Lateral SclerosisALS With Frontotemporal Dementia (ALS/FTD)+4 more Northwestern University 13,521