Not applicableStudy completedNCT03680924What this trial is testingAccess to Resources for Patients With PTEN Hamartoma Tumor SyndromeWho this might be right forPTEN Gene Mutation University of South Florida 13
Not applicableLooking for participantsNCT06805734What this trial is testingNatural History With Focus on Oncological Risk Evaluation in Pediatric Patients With PTEN Pathogenic VariantsWho this might be right forPTEN Hamartoma Syndrome Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta 50
Not applicableUnknownNCT03630523What this trial is testingResponse of Immune System to Flu Vaccination in PHTSWho this might be right forPTEN Hamartoma Tumor Syndrome Radboud University Medical Center 30
Testing effectiveness (Phase 2)Study completedNCT00971789What this trial is testingSirolimus to Treat Cowden Syndrome and Other PTEN Hamartomatous Tumor SyndromesWho this might be right forCowden's DiseaseHamartoma Syndrome, Multiple National Cancer Institute (NCI) 18
Testing effectiveness (Phase 2)Study completedNCT04094675What this trial is testingSirolimus for Cowden Syndrome With Colon PolyposisWho this might be right forPTEN Gene MutationPTEN Hamartoma Tumor SyndromePTEN Hamartoma Syndrome+4 more Ohio State University 5
Testing effectiveness (Phase 2)Study completedNCT02991807What this trial is testingRAD001 and Neurocognition in PTEN Hamartoma Tumor SyndromeWho this might be right forPTEN Gene MutationPTEN Hamartoma Tumor Syndrome Boston Children's Hospital 46
Not applicableStudy completedNCT05671107What this trial is testingDevelopment and Validation of an Online Neurobehavioral Evaluation Tool for PTEN PatientsWho this might be right forPTEN Hamartoma Tumor Syndrome John Carroll University 300
Not applicableLooking for participantsNCT06712095What this trial is testingVideo Capsule Examination in Patients With Lynch SyndromeWho this might be right forLynch SyndromeLi Fraumeni SyndromePTEN Hamartoma Syndrome+7 more Royal Marsden NHS Foundation Trust 25
Not applicableLooking for participantsNCT02461446What this trial is testingNatural History Study of Individuals With Autism and Germline Heterozygous PTEN MutationsWho this might be right forPTENASDAutism+2 more Boston Children's Hospital 170
Not applicableLooking for participantsNCT03050268What this trial is testingFamilial Investigations of Childhood Cancer PredispositionWho this might be right forAcute LeukemiaAdenomatous PolyposisAdrenocortical Carcinoma+43 more St. Jude Children's Research Hospital 1,500
Large-scale testing (Phase 3)Not Yet RecruitingNCT07218575What this trial is testingDouble-Blind Trial of Everolimus for Improving Social Abilities in PTEN Germline MutationsWho this might be right forCowden's DiseaseCowden's SyndromeLhermitte-Duclos Disease+6 more Boston Children's Hospital 60
Not applicableLooking for participantsNCT06462430What this trial is testingPTEN Hamartoma Tumor Syndrome Pediatric Patient RegistryWho this might be right forPTEN Hamartoma Tumor SyndromeMacrocephaly Autism Syndrome Yale University 100
Testing effectiveness (Phase 2)WithdrawnNCT06080165What this trial is testingSirolimus for Improving Social Abilities in People With PTEN Germline MutationsWho this might be right forPTEN Gene MutationPTEN Hamartoma Tumor SyndromePTEN Hamartoma Syndrome Stanford University