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Results for “Rare Bleeding Disorders”

24 trials

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Showing 20 of 24 results

Not applicableEnrolling By InvitationNCT03655223
What this trial is testing

Early Check: Expanded Screening in Newborns

Who this might be right for
Spinal Muscular AtrophyFragile X SyndromeFragile X - Premutation+182 more
RTI International 30,000
Not applicableNot Yet RecruitingNCT07518940
What this trial is testing

ENERGIA: Personalized Exercise Program for Fatigue in Patients With Myeloproliferative Neoplasms and Chronic Myeloid Leukemia

Who this might be right for
Myeloproliferative DiseasePolycythemia VeraThrombocythemia Essential+2 more
Carmen Fava 25
Not applicableLooking for participantsNCT07205861
What this trial is testing

Retrospective Epidemiological Study of Patients in the National Cohort of the French TMA Center

Who this might be right for
Thrombotic Thrombocytopenic Purpura (TTP)Immune Thrombotic Thrombocytopenic PurpuraThrombotic Microangiopathies+5 more
Assistance Publique - Hôpitaux de Paris 1,200
Not applicableLooking for participantsNCT06250595
What this trial is testing

European Rare Blood Disorders Platform (ENROL)

Who this might be right for
AnemiaBone Marrow FailureBleeding Disorder+9 more
Hospital Universitari Vall d'Hebron Research Institute 37,090
Not applicableWithdrawnNCT04541875
What this trial is testing

Medication Adherence and Non-adherence in Adults With Rare Disease

Who this might be right for
Cystic FibrosisHemophilia AHemophilia B+3 more
Xperiome
Testing effectiveness (Phase 2)Study completedNCT00004801
What this trial is testing

Phase I/II Study of Monoclonal Factor IX Concentrate for Factor IX Deficiency

Who this might be right for
Hemophilia BFactor IX Deficiency
National Center for Research Resources (NCRR) 3
Not applicableActive Not RecruitingNCT04628871
What this trial is testing

Long Term Follow-up (LTFU) of Subjects Who Received SB-318, SB-913, or SB-FIX

Who this might be right for
Hemophilia BMucopolysaccharidosis IMucopolysaccharidosis II
Sangamo Therapeutics 13
Not applicableStudy completedNCT05028894
What this trial is testing

23andMe IPF Research Study

Who this might be right for
Idiopathic Pulmonary Fibrosis
23andMe, Inc. 690
Testing effectiveness (Phase 2)Study completedNCT00005652
What this trial is testing

Phase II Study of Rituximab in Patients With Immune Thrombocytopenic Purpura

Who this might be right for
Purpura, Thrombocytopenic, Idiopathic
University of Alabama at Birmingham 20
Not applicableStudy completedNCT03713151
What this trial is testing

Feasibility of a Blended Therapy Approach

Who this might be right for
TelemedicineExerciseFeasibility+2 more
University of Zurich 30
Not applicableStudy completedNCT00640289
What this trial is testing

Clinical Trial of Factor XIII (FXIII) Concentrate

Who this might be right for
HemophiliaFactor XIII Deficiency
Children's Hospital of Orange County 72
Not applicableEnrolling By InvitationNCT07163260
What this trial is testing

Defeat Rare Disease in Asia and Pacific (APAC) DRDA - Haemophilia

Who this might be right for
Haemophilia
Novo Nordisk A/S 244
Not applicableUnknownNCT00006055
What this trial is testing

Autologous Peripheral Blood Stem Cell Transplantation in Patients With Life Threatening Autoimmune Diseases

Who this might be right for
Purpura, Schoenlein-HenochGraft Versus Host DiseaseAnemia, Hemolytic, Autoimmune+11 more
Fairview University Medical Center 10
Not applicableStudy completedNCT04057703
What this trial is testing

Balance Benefit / Risk of Immunomodulatory Treatments at the Child and Adolescent for Autoimmune Cytopenia.

Who this might be right for
Immune Thrombocytopenic PurpuraAutoimmune Hemolytic AnemiaEvan Syndrome+1 more
University Hospital, Bordeaux 454
Not applicableUnknownNCT05381922
What this trial is testing

Rare Inherited Bleedig Disorders in Children at Sohag University Hospital

Who this might be right for
Rare Inherited Bleeding Disorders in Children at Sohag University Hospital
Sohag University 20
Not applicableEnrolling By InvitationNCT06938542
What this trial is testing

Palliative Care Needs of Children With Rare Diseases and Their Families

Who this might be right for
Trisomy 13 SyndromeArthrogryposis Congenita Multiplex With Intestinal AtresiaAsparagine Synthetase Deficiency+16 more
Children's National Research Institute 480
Early research (Phase 1)Study completedNCT00004667
What this trial is testing

Phase I Study of Human Von Willebrand Factor for Von Willebrand's Disease

Who this might be right for
Von Willebrand's Disease
National Center for Research Resources (NCRR) 10
Testing effectiveness (Phase 2)Study completedNCT00010387
What this trial is testing

Phase II Study of High-Dose Cyclophosphamide in Patients With Severe Autoimmune Hematologic Disease

Who this might be right for
Anemia, Hemolytic, AutoimmuneFelty SyndromePurpura, Thrombocytopenic+1 more
Johns Hopkins University 32
Not applicableLooking for participantsNCT04398628
What this trial is testing

ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

Who this might be right for
Hematologic DisorderBleeding DisorderConnective Tissue Disorder+10 more
American Thrombosis and Hemostasis Network 3,000
Not applicableUnknownNCT00004341
What this trial is testing

Study of Genetic and Molecular Defects in Primary Immunodeficiency Disorders

Who this might be right for
X-Linked AgammaglobulinemiaX-Linked Hyper IgM SyndromeWiskott-Aldrich Syndrome+1 more
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
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