Not applicableUnknownNCT05685836What this trial is testing89Zr-Bevacizumab PET/CT Imaging in NF2 PatientsWho this might be right forNeurofibromatosis 2 Leiden University Medical Center 15
Not applicableLooking for participantsNCT01885767What this trial is testingNeurofibromatosis (NF) Registry PortalWho this might be right forNeurofibromatosis 1Neurofibromatosis 2Schwannomatosis The Children's Tumor Foundation 20,000
Testing effectiveness (Phase 2)UnknownNCT04163419What this trial is testingPhase 2 Study of Tanezumab in Subjects With Moderate to Severe Pain Due to SchwannomatosisWho this might be right forSchwannomatosisPain Massachusetts General Hospital 9
Not applicableStudy completedNCT02435628What this trial is testingRelationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NFWho this might be right forNeurofibromatosis Massachusetts General Hospital 86
Testing effectiveness (Phase 2)UnknownNCT04085159What this trial is testingImmunotherapy Based on Antigen-specific Immune Effector Cells Targeting Neurofibromatosis or SchwannomatosisWho this might be right forCancer Shenzhen Geno-Immune Medical Institute 100
Not applicableStudy completedNCT02298270What this trial is testingResiliency Training for Patients With Neurofibromatosis Via Videoconferencing With SkypeWho this might be right forNeurofibromatosisNeurofibromatosis INeurofibromatosis 2+1 more Massachusetts General Hospital 65
Post-approval studies (Phase 4)WithdrawnNCT00588172What this trial is testingGenetic Variation in OCT1 and Response to MetforminWho this might be right forType 2 Diabetes Mayo Clinic
Not applicableNo Longer AvailableNCT03874455What this trial is testingTazemetostat Expanded Access Program for Adults With Solid TumorsWho this might be right forEpithelioid Sarcoma (Ex-US Only)Spindle Cell SarcomaSinonasal Carcinoma+17 more Epizyme, Inc.
Not applicableLooking for participantsNCT07420751What this trial is testingAssessment of Patient Experience With Auto-Captioning Glasses in NF2-Related-SchwannomatosisWho this might be right forNF2-related Schwannomatosis Massachusetts General Hospital 20
Testing effectiveness (Phase 2)Active Not RecruitingNCT04374305What this trial is testingInnovative Trial for Understanding the Impact of Targeted Therapies in NF2-Related Schwannomatosis (INTUITT-NF2)Who this might be right forNeurofibromatosis Type 2Vestibular SchwannomaNon-vestibular Schwannoma+2 more Scott R. Plotkin, MD, PhD 100
Testing effectiveness (Phase 2)Looking for participantsNCT05684692What this trial is testingScreening Trial for Pain Relief in Schwannomatosis (STARFISH)Who this might be right forSchwannomatosisSchwannomasPain, Chronic Massachusetts General Hospital 40
Not applicableStudy completedNCT03406208What this trial is testingResiliency Training for Adults With Neurofibromatosis Via Live VideoconferencingWho this might be right forNeurofibromatosesNeurofibromatosis 1Neurofibromatosis 2+1 more Massachusetts General Hospital 228