Early research (Phase 1)UnknownNCT00574054What this trial is testingFar Infrared Radiation Treatment of Dementia and Other Mental IllnessWho this might be right forDementia GAAD Medical Research Institute Inc. 4
Not applicableLooking for participantsNCT03865420What this trial is testingAmyotrophic Lateral Sclerosis (ALS) Families ProjectWho this might be right forALS Columbia University 300
Not applicableEnrolling By InvitationNCT03655223What this trial is testingEarly Check: Expanded Screening in NewbornsWho this might be right forSpinal Muscular AtrophyFragile X SyndromeFragile X - Premutation+182 more RTI International 30,000
Not applicableStudy completedNCT05852405What this trial is testingClinical Characteristics, Natural History, Health Care Measures, and Genetic Screening in Patients With ALSWho this might be right forMotor Neuron Disease, Amyotrophic Lateral Sclerosis Ambulanzpartner Soziotechnologie APST GmbH 2,000
Not applicableStudy completedNCT04287738What this trial is testingCare Ecosystem: Navigating Patients and Families Through Stages of Care, Extension TrialWho this might be right forDementiaAlzheimer DiseaseDementia, Vascular+3 more University of California, San Francisco 912
Not applicableLooking for participantsNCT00317616What this trial is testingThe Pre-symptomatic Familial Amyotrophic Lateral Sclerosis (Pre-fALS) StudyWho this might be right forAmyotrophic Lateral Sclerosis University of Miami 500
Testing effectiveness (Phase 2)Looking for participantsNCT05331144What this trial is testingImpact of Intensive Treatment of SBP on Brain Perfusion, Amyloid, and Tau (IPAT Study)Who this might be right forCognitively Normal Older AdultsHypertensionSubjective Cognitive Decline+1 more Rong Zhang 180
Not applicableLooking for participantsNCT05596760What this trial is testingPromoting Goals-of-Care Discussions for Patients With Memory Problems and Their CaregiversWho this might be right forDementiaDementia, VascularMixed Dementias+14 more University of Washington 1,800
Not applicableStudy completedNCT04469894What this trial is testingHealth Insurance Literacy and Challenges in Accessing Health Services in Niemann-PickWho this might be right forNiemann-Pick Diseases National Niemann-Pick Disease Foundation 76
Not applicableLooking for participantsNCT04715399What this trial is testingUPenn Observational Research Repository on Neurodegenerative DiseaseWho this might be right forFrontotemporal Degeneration(FTD)Primary Progressive Aphasia(PPA)Familial Frontotemporal Lobar Degeneration (fFTLD)+6 more University of Pennsylvania 1,000
Not applicableStudy completedNCT05916664What this trial is testingEfficacy Study of Kinto Care Coaching for Dementia Family CaregiversWho this might be right forDementiaAlzheimer DiseaseLewy Body Disease+3 more Kinto 495
Not applicableLooking for participantsNCT06613204What this trial is testingSTELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care PartnersWho this might be right forFrontotemporal DementiaCaregiver BurdenPrimary Progressive Aphasia (PPA)+1 more Oregon Health and Science University 640
Not applicableLooking for participantsNCT01353430What this trial is testingCharacterization of Inclusion Body Myopathy Associated With Paget's Disease of Bone and Frontotemporal Dementia (IBMPFD)Who this might be right forInclusion Body Myopathy With Early-onset Paget Disease and Frontotemporal DementiaPaget Disease of BoneFrontotemporal Dementia+1 more University of California, Irvine 50
Not applicableStudy completedNCT02686268What this trial is testingUnderstanding Clinical Phenotype and Collecting Biomarker Samples in C9ORF72 ALSWho this might be right forC9ORF72 Amyotrophic Lateral Sclerosis (ALS) Washington University School of Medicine 128
Not applicableLooking for participantsNCT05779813What this trial is testingGenetic Frontotemporal Dementia Initiative for NeurodevelopmentWho this might be right forFrontotemporal DementiaFamily Members Western University 200
Not applicableLooking for participantsNCT01793168What this trial is testingRare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at SanfordWho this might be right forRare DisordersUndiagnosed DisordersDisorders of Unknown Prevalence+340 more Sanford Health 20,000
Not applicableStudy completedNCT06471660What this trial is testingFamily Caregiver Online Survey (Dementia and Swallowing Difficulties)Who this might be right forDementiaDysphagiaDementia Alzheimers+9 more University of Oregon 219
Not applicableWithdrawnNCT01459302What this trial is testingGenetic Study of Familial and Sporadic ALS/Motor Neuron Disease, Miyoshi Myopathy and Other Neuromuscular DisordersWho this might be right forAmyotrophic Lateral SclerosisFrontotemporal DementiaPLS+7 more University of Massachusetts, Worcester
Not applicableStudy completedNCT02372773What this trial is testingLongitudinal Evaluation of Familial Frontotemporal Dementia SubjectsWho this might be right forFamilial Frontotemporal Dementia Mayo Clinic 398
Not applicableStudy completedNCT00821132What this trial is testingGenetics of Familial and Sporadic ALSWho this might be right forAmyotrophic Lateral Sclerosis (ALS)Familial Amyotrophic Lateral SclerosisALS With Frontotemporal Dementia (ALS/FTD)+4 more Northwestern University 13,521